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Mum of girl with rare disease donates blood due to shortage

PICTURED: Lisa Phillip and her daughter Miai

OVER THE last three years, there has been an 80% increase in demand for a rare blood type from London hospitals.

The increase is driven by a growing number of people with sickle cell disease; the most common and fastest growing genetic disorder in the UK.

The NHS urgently needs black Londoners to give blood to meet the rising demand. The rare blood group is called Ro and London’s blood Stock Holding Units are now being asked for 3,966 units every month. Ro is much more common in black people and there is not enough Ro blood to meet demand.

For mum Lisa Phillip, 40, an actress from Lewisham, the call for more blood donors, especially those from the black community, is a personal one. Lisa’s eight-year-old daughter Miai has sickle cell disease and receives blood transfusions at University College Hospital.

On Friday (Jul 20), Ms Phillip will be attending the ‘Summer of Saving Lives’ event in Catford, at the St Laurence Centre and will be donating at 1pm as a thank you to all blood donors who have helped Miai.

The event has been organised with the charities SickleKan, Unsickle My Cells and WANTS ssg (We Are Not The Same Sicklecell Support Group) to encourage more black people to give blood to help sickle cell patients.


Miai in hospital

Ms Phillip said: “There are a whirlwind of emotions that come with being a parent of a child with sickle cell disease. Miai has had six blood transfusions in her short life and I’ve witnessed the incredible benefits first hand.

“When Miai has a sickle cell crisis, it usually starts with pain in her joints and increasingly in her chest. The pain is unbearable and can be very hard to manage as it's often felt deep into the bone. It can last days or weeks.”

She added: “It is very important we encourage our communities to regularly donate to ensure there is enough in supply to meet demand and help individuals like Miai on the road to recovery.

“My gratitude extends to all the donors who have helped Miai and given her the strength to do all the things she loves best. If you are thinking about giving blood for the first time or you are a regular donor please be reassured that each bag of blood is like a little bag of hope. It’s an invaluable life line.”

More than 70 people donated at the previous blood drive and more are expected to give blood at the upcoming event as there will be music, speeches, and food. Across London, there are around 4,500 black blood donors, and the number is increasing.

Mike Stredder, director of blood donation for NHS Blood and Transplant said: “We’re so grateful for the support of SickleKan, Unsickle My Cells, and We Are Not The Same. More and more black people are saving lives through blood donation and we plan to hold more community events like this. However the overall shortage of donors remains and we need more people to register as donors – it’s quick and easy to start saving lives.”

To register as a blood donor, visit www.blood.co.uk

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